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Today I went to see Roy and Vickie, we talked seamlessly for over 2 hours. It was a really pleasant time, Roy shared with me his cancer story. It was a good time, I was asked the same question as Dave and Anne asked me though. “Do I ever get down” so now I will tell you how I cope with that, how I did cope with that, and hopefully what makes me feel like that.
It’s hard to know where to start really, because people seem to think I am some kind of infalable being that just gets on an does it. (Not true) it’s hard for me to talk about being weak, as it’s not in my nature to show that side of me. However the bible talks about when I am weak then he is strong. Don’t get me wrong I am not going to come across all religious on you, but this is how it happened to me. I remember quite distinctly the day that I realised beating cancer was not possible, cancer stories did not exsist then. I know if it had I would most certainly have coped better, I remember watching a movie I think it was called the awakening. Robert de Nero played a part of someone who deteriated badly, I remember how I wept the know the audible crying, feeling like you are out of control. I dropped to my knees that night, I cryed out loud. Please help me if your there, I can’t do this alone. I was not finding it hard fighting cancer, I could no longer do it anymore. It was just a wave of negativity that flooded my being, it would not be the last either. That was just the beginning of digging to the deepest you thought possible,my then having to dig deeper again.
Us humans are stubborn when it comes to losing our lives, or I was anyway. I had found the recipe for the rest of my life, a good wife, a great house. My little sports car, my faith but the one thing that was holding all that together was my health. Even so, no matter how sick I felt I always got up, I remember one day when I did not get up till 5 pm. There being a cold chill in my room, it felt like I was being taken. Dieing, that I was slipping away. I felt like I was being pulled out of a sleeping bag as they tried to take my life. I refused and fought like hell that day, getting up for tea time. I dare not sleep that day and night drinking plenty of fluid, feeling like snakes were in my head. The drugs I was on were pioneering drugs, as I was on a trial for a new drug that I agreed to have put in my body. Eventually over Christmas 2011 I finished my chemo and had the Christmas they said I would not have without the treatment. Apparently I had gotten into remission. No fan fare no party, they were just words that I did not believe. I felt all along it was still there!
I was explaining today how my cancer hid, and although I was supposed to be in remission. I knew the cancer cells were hiding in my bones. I could feel them almost laughing at me. Non of the scans picked it up, as they were rougue cells and scanners only picked up clusters. Everyday I would get up and wonder if today was the day it would show itself. Although I did put faith into practice by buying a Labrador and calling her Faith as that’s what I needed to get into remmission.
I remember when it came back again (hard recalling this) coiling up into a ball and crying my heart out. The consultant had told me I would have to have my bone marrow removed, and have a stem cell transplant. This was to be done in isolation in a tiny room. Excuse my language, but how in the hell could I possibly do that, were they mad! I could see no way. For me it was a step to far, an impossible ask. I ached hopelessly inside, I asked time and time again if there was another option. Non what so ever this was my only hope, no more life for me with out it. It made me shake, I would be physically sick at the thought.
In everyone of those moments, I made myself read positivity. Quotes from the bible, positive people on Twitter, Google and many other places just positives. Friends, family, everyone was only to speak positively to me. No moaning. When I finally got into the room. That big silverback became a weak hopeless human, put into the hands of medicine.
The day I became nutrapenic, I felt really strange I left my body and even though I was talking to Andie, I felt like I was actually leaving the planet. I held on tight to Andies hand, I believed it was to early. That what was the point in me being the one who did not make it surely there was a reason for me having this. As I hovered above myself I remember hearing the words “not yet” I don’t know who said them but it certainly was a comfort to me. The day before that I had been sat by the window shaking violently, imagining myself timing sheets together to escape. The door was always open, I could have left at any time, it was not escape from Alcatraz. That’s what being neutapenic made me feel.
So my friends, all of these things I felt, some I still feel. I know what the guilt feels like, to have made it where others don’t. That’s the only “why me” sentence I have said. Remember this, when you think there is no more to give. There always is, with determination AND FAITH you. “yes you” can do ANYTHING. Don’t give up, because you have friends.
It’s a group where people’s experiences are used to encourage others.
Everything you read are based on my own experience and my own opinions. I express them here to encourage you. Please share with others, if it meant something to you it will to someone else.